careraware.org is owned and operated by Carers UK.
Carers UK is committed to protecting your personal information and being transparent about what we do with it, no matter how you interact with us. That’s whether you join as a member, create an account in one of the online platforms we own and operate, buy our products and services, subscribe to our newsletter or want to learn more about what we do.
This Privacy Notice tells you what to expect when Carers UK collects personal information on the Carer Aware platform (https://careraware.org).
We are committed to using your personal information in accordance with our responsibilities. We are required to provide you with the information in this Privacy Notice under applicable law which includes:
- the Data Protection Act 1998, which will be replaced by the General Data Protection Regulation (EU) 2016/679 from 25 May 2018
- the Privacy and Electronic Communications (EC Directive) Regulations 2003.
We won’t do anything with your information you wouldn’t reasonably expect.
Processing of your personal information is carried out by or on behalf of Carers UK, registered as a charity in England and Wales (246329), Scotland (SC039307); and Carers UK Trading Ltd registered as a company in England and Wales (06034910) (collectively ‘Carers UK Group’).
If you have any queries about our Privacy Notice, please get in touch by
Email: [email protected]
Phone:020 7378 4945 or
Post: Data Protection Advisor Carers UK 20 Great Dover Street London SE1 4LX
How and when we collect information about you
When you directly give us information
We will collect and store information about you when you interact with us. For example, this could be when you:
sign up for a new Carer Aware user account
fill in information on an activity for an e-learning module
contact us to receive technical support, give us feedback or make a complaint
When you indirectly give us information
We may obtain information about your visit to our site, for example the pages you visit and how you navigate the site, by using cookies. Please visit our cookies policy for information on this.
What information we might collect
When you engage with us we may collect information about you (referred to in this Privacy Notice as 'personal information'). If you are signing up for a new Carer Aware user account we will ask you to provide your email address. If you contact us by phone, mail, in person or online in order to receive more information about the service, access technical support, give feedback or make a complaint information we collect may include your name, email address, telephone number, and other information relating to you personally which you may choose to provide to us.
Data protection law recognises that certain types of personal information are more sensitive. This is known as 'sensitive' or 'special category' personal information and covers information revealing racial or ethnic origin, religious or philosophical beliefs and political opinions, trade union membership, genetic or biometric data, information concerning health or data concerning a person's sex life or sexual orientation.
We do not normally collect sensitive information but in the case we do this will only be collected where necessary and only with your explicit consent. Clear notices will be provided at the time we collect this information, stating what information is needed, and why.
If you're 16 or under
If you're aged 16 or under, you must get your parent/guardian’s permission before you provide any personal information to us.
How and why we use your information
We will use your personal information for the following purposes:
To provide access to the Carer Aware platform: We will use your personal information to allow you to access to our website, personalise your experience, and improve and develop it further. In particular, we will use your personal information (email) to facilitate the creation of a user account - this will allow you to log in to the platform and access resources. We may also use your personal information to keep you current with important service updates (these are not marketing emails).
Responding to a request: If you contact us with a query, we may use your personal information to provide you with a response.
Monitoring and Evaluation: We may use your information in order to improve current and future delivery of our service.
Administration: We may use your personal information to record and deal with a complaint, record a request not to receive further marketing information, record what our volunteers have done for us, and for other essential internal record keeping purposes.
Who do we share your information with?
We will only use your information for the purposes for which it was obtained. We will not, under any circumstances, sell or share your personal information with any third party for their own purposes, and you will not receive marketing from any other companies, charities or other organisations as a result of giving your details to us.
We will only share your data for the following purposes:
- Third party suppliers: We may need to share your information with data hosting providers or service providers who help us to deliver our products, services or projects. These providers will only act under our instruction and are subject to pre-contract scrutiny and contractual obligations containing strict data protection clauses.
- We always aim to ensure that personal information is only used by those third parties for lawful purposes in accordance with this Privacy Notice.
How we protect your information
We use technical and corporate organisational safeguards to ensure that your personal information is secure. We limit access to information on a need-to-know basis and take appropriate measures to ensure that our people are aware that such information is only used in accordance with this Privacy Notice.
We undertake regular reviews of who has access to information that we hold to ensure that your information is only accessible by appropriately trained staff, volunteers and contractors.
Our online forms are always encrypted and our network is protected and routinely monitored.
Carer Aware platform data is stored in a safe and secure hosting infrastructure within the UK (Equinix LD5). The system complies with the following security and assurance certifications:
- SSAE16/ISAE3402 SOC-1 Type II
- ISO 27001
- OHSAS 18001
- ISO 9001
- ISO 50001
Backups to this system are stored with Amazon S3 at their Ireland Data Centres. Both centres comply fully with GDPR.
How long will we keep your information?
We will keep your personal information only as long as it is necessary for the purposes for which it was collected, taking into account guidance issued by the Information Commissioner’s Office.
If you request that we stop processing your personal information for the purpose of marketing we may in some instances need to add your details to a suppression file to enable us to comply with your request not to be contacted.
International transfers of information
We may, on occasion decide to use the services of a supplier outside the European Economic Area (EEA), which means that your personal information is transferred, processed and stored outside the EEA. You should be aware that, in general, legal protection for personal information in countries outside the EEA may not be equivalent to the level of protection provided in the EEA.
However we take steps to put in place suitable safeguards to protect your personal information when processed by the supplier such as entering into the European Commission approved standard contractual clauses. By submitting your personal information to us you agree to this transfer, storing or processing at a location outside the EEA.
Your rights to your personal information
Data protection legislation gives you the right to request access to personal information about you which is processed by Carers UK and to have any inaccuracies corrected.
You also have the right to ask us to erase your personal information, ask us to restrict our processing of your personal information or to object to our processing of your personal information.
If you wish to exercise these rights, please write to us and send it along with copies of two separate identification documents which provide photo identification and confirm your address, such as a passport, driving licence, or utility bill.
Please also provide any additional information that is relevant to the nature of your contact with us, as this will help us to locate your records.
You can send us the documents via post to: Data Protection Advisor Carers UK 20 Great Dover Street London SE1 4LX
Alternatively email a copy of the form along with scans or photos of your two forms of identification to: [email protected]
We will respond within 30 days, on receipt of your written request and copies of your identification documents.
How to make a complaint or raise a concern
If you would like more information, or have any questions about this policy, to make a formal complaint about our approach to data protection or raise privacy concerns please contact by:
Email: [email protected]
Phone: 020 7378 4945
Post: Carers UK
20 Great Dover Street
If you would like to make a complaint in relation to how we have handled your personal information, please follow our complaints procedure. If you are not happy with the response you receive, then you can raise your concern with the relevant statutory body:
Information Commissioner’s Office Wycliffe House Water Lane Wilmslow Cheshire SK9 5AF
Alternatively you can visit their website.
We are registered with the Information Commissioner’s Office as a Data Controller under number Z7307775.
Changes to our Privacy Notice
Our Privacy Notice may change from time to time, so please check this page occasionally to see if we have included any updates or changes, and that you are happy with them.